The Healthcare Amyloidosis European Registry (HEAR): design of a national registry with a European extension strategy, and foundation of the F-CRIN GRACE network
欧洲淀粉样变性医疗保健注册中心 (HEAR)：设计具有欧洲扩展战略的国家注册中心，并建立 F-CRIN GRACE 网络
期刊:Orphanet Journal of Rare Diseases
影响因子:
doi:10.1186/s13023-025-04062-y
Réant, Patricia; Kharoubi, Mounira; Donal, Erwan; Bauer, Fabrice; Bézard, Mélanie; Bisson, Arnaud; Bodez, Diane; Bouchot, Océane; Cariou, Eve; Charron, Phillipe; Costa, Jérôme; Courand, Pierre-Yves; Dagrenat, Charlotte; Delelis, Francois; Duval, Antoine Jobbe; Eicher, Jean-Christophe; Fraix, Antoine; Gellen, Barnabas; Gueffet, Jean-Pierre; Guijarro, Damien; Habib, Gilbert; Hagège, Albert; Huttin, Olivier; Jaccard, Arnaud; Jeanneteau, Julien; Legallois, Damien; Logeart, Damien; Legrand, Lise; Inamo, Jocelyn; Marguerit, Léa; Mirailles, Raphaël; Pezel, Théo; Piriou, Nicolas; Roubille, Francois; Mouhat, Basile; Trésorier, Romain; Von Hunolstein, Jean-Jacques; Taieb, Charles; Salvat, Muriel; Zaroui, Amira; Lairez, Olivier; Damy, Thibaud
