日期 影响因子
日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:
–

Clinical decision-making in rare bone diseases - A survey among members of the European Paediatric Orthopaedic Society (EPOS) and the European Reference Network on Rare Bone Diseases (ERN BOND)

罕见骨病临床决策——欧洲儿科骨科学会 (EPOS) 和欧洲罕见骨病参考网络 (ERN BOND) 成员调查

期刊:Journal of Childrens Orthopaedics
影响因子:1.6
doi:10.1177/18632521261439074
Gamage, Thilini H; Coutinho, Silvia; Leardini, Alberto; Alves, Inês; Großmann, Nadine; Sakkers, Ralph; Marcucci, Gemma; Masi, Laura; Brandi, Maria Luisa; Zillikens, M Carola; Trisolino, Giovanni; Wekre, Lena Lande; Horn, Joachim
EPO
发表日期：2026
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Clinical decision-making in rare bone diseases – A survey among members of the European Paediatric Orthopaedic Society (EPOS) and the European Reference Network on Rare Bone Diseases (ERN BOND)

罕见骨病临床决策——欧洲儿科骨科学会 (EPOS) 和欧洲罕见骨病参考网络 (ERN BOND) 成员调查

期刊:Journal of Childrens Orthopaedics
影响因子:1.6
doi:10.1177/18632521251355884
van Geloven, Thomas Pg; de Witte, Pieter Bas; Laitinen, Minna K; Campanacci, Domenico A; Döring, Kevin; Dammerer, Dietmar; Mesregah, Mohamed K; Appelman-Dijkstra, Natasja M; Haara, Mikko; Beltrami, Giovanni; Hobusch, Gerhard M; Kraus, Tanja; Farr, Sebastian; Soto-Montoya, Camilo; Medellin Rincon, Manuel R; Saeed, Javeria; Funovics, Phillipp T; van der Heijden, Lizz; van de Sande, Michiel Aj; Gamage, Thilini H; Coutinho, Silvia; Leardini, Alberto; Alves, Inês; Großmann, Nadine; Sakkers, Ralph; Marcucci, Gemma; Masi, Laura; Brandi, Maria Luisa; Zillikens, M Carola; Trisolino, Giovanni; Wekre, Lena Lande; Horn, Joachim
EPO
发表日期：2026
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The IMPACT Survey: The Economic Impact of Caring for an Individual with Osteogenesis Imperfecta

IMPACT调查：照顾成骨不全患者的经济影响

期刊:Advances in Therapy
影响因子:4
doi:10.1007/s12325-025-03373-7
Rauch, Frank; van Welzenis, Taco; Wekre, Lena Lande; Raggio, Cathleen; Semler, Oliver; Westerheim, Ingunn; Mulhall, Heather; Anderson, Melanie; Prince, Samantha; Hart, Tracy
发表日期：2025
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The IMPACT Survey: The Humanistic Impact of Caring for an Individual with Osteogenesis Imperfecta

IMPACT调查：照顾成骨不全患者的人文影响

期刊:Advances in Therapy
影响因子:4
doi:10.1007/s12325-025-03372-8
Westerheim, Ingunn; Rauch, Frank; Hart, Tracy; Wekre, Lena Lande; van Welzenis, Taco; Raggio, Cathleen; Mulhall, Heather; Battersby, Alysia; Prince, Samantha; Semler, Oliver
Human
发表日期：2025
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Transition Care for Young Persons with Rare Bone Mineral Conditions: A Consensus Recommendation from the ECTS Rare Bone Disease Action Group

罕见骨矿物质疾病青少年过渡期护理：欧洲骨科医师学会罕见骨病行动组的共识建议

期刊:Calcified Tissue International
影响因子:3.2
doi:10.1007/s00223-025-01382-w
Grasemann, Corinna; Wernsmann, Joline; Appelman-Dijkstra, Natasha M; Morgan, Chloe; Sylvest, Tenna Toft; Raimann, Adalbert; Siggelkow, Heide; Lems, Willem F; Turan, Serap; Zillikens, M Carola; Wekre, Lena Lande; Alves, Inês; Solal, M Cohen; Yavropoulou, Maria P; Clunie, Gavin
发表日期：2025
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The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults

IMPACT调查：成骨不全症对成年人的人文影响

期刊:BMC Public Health
影响因子:3.6
doi:10.1186/s12889-024-20555-0
van Welzenis, Taco; Westerheim, Ingunn; Hart, Tracy; Wekre, Lena Lande; Semler, Oliver; Rauch, Frank; Dewavrin, Laetitia; Dadzie, Ruby; Prince, Samantha; Raggio, Cathleen
发表日期：2024
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The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers

IMPACT调查：一项混合方法研究，旨在了解成骨不全症儿童、青少年和成人及其照护者的经历

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-024-03126-9
Westerheim, Ingunn; Hart, Tracy; van Welzenis, Taco; Wekre, Lena Lande; Semler, Oliver; Raggio, Cathleen; Bober, Michael B; Rapoport, Maria; Prince, Samantha; Rauch, Frank
发表日期：2024
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The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults

IMPACT调查：成骨不全症对成年人的经济影响

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-024-03218-6
Hart, Tracy; Westerheim, Ingunn; van Welzenis, Taco; Semler, Oliver; Raggio, Cathleen; Rauch, Frank; Dadzie, Ruby; Prince, Samantha; Wekre, Lena Lande
发表日期：2024
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Osteogenesis Imperfecta: Skeletal and Non-skeletal Challenges in Adulthood

成骨不全症：成年期的骨骼和非骨骼挑战

期刊:Calcified Tissue International
影响因子:3.2
doi:10.1007/s00223-024-01236-x
Hald, Jannie Dahl; Langdahl, Bente; Folkestad, Lars; Wekre, Lena Lande; Johnson, Riley; Nagamani, Sandesh C S; Raggio, Cathleen; Ralston, Stuart H; Semler, Oliver; Tosi, Laura; Orwoll, Eric
发表日期：2024
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The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review

成骨不全患者的临床历程及其社会经济影响：一项系统性范围综述

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-023-02627-3
Rapoport, Maria; Bober, Michael B; Raggio, Cathleen; Wekre, Lena Lande; Rauch, Frank; Westerheim, Ingunn; Hart, Tracy; van Welzenis, Taco; Mistry, Arun; Clancy, James; Booth, Lucy; Prince, Samantha; Semler, Oliver
发表日期：2023
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