日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

A systematic literature review of the impact and measurement of mobility impairment in rare bone diseases

对罕见骨病中行动障碍的影响和测量方法进行系统性文献综述

Alves, Inês; Westerheim, Ingunn; Hsiao, Edward C; Upadhyay, Jaymin; Sangiorgi, Luca; Artyomenko, Alexander; Croskery, Kim; Johns, Juliet; Warnants, Emma; Barton, Gabor

The IMPACT Survey: The Economic Impact of Caring for an Individual with Osteogenesis Imperfecta

IMPACT调查:照顾成骨不全患者的经济影响

Rauch, Frank; van Welzenis, Taco; Wekre, Lena Lande; Raggio, Cathleen; Semler, Oliver; Westerheim, Ingunn; Mulhall, Heather; Anderson, Melanie; Prince, Samantha; Hart, Tracy

The IMPACT Survey: The Humanistic Impact of Caring for an Individual with Osteogenesis Imperfecta

IMPACT调查:照顾成骨不全患者的人文影响

Westerheim, Ingunn; Rauch, Frank; Hart, Tracy; Wekre, Lena Lande; van Welzenis, Taco; Raggio, Cathleen; Mulhall, Heather; Battersby, Alysia; Prince, Samantha; Semler, Oliver

Relative validity of bioelectrical impedance analysis in estimating body composition in women with overweight and obesity 2 weeks and 6 months postpartum

生物电阻抗分析法在评估超重和肥胖女性产后2周和6个月的身体成分方面的相对有效性

Westerheim, Elin; Øhman, Elisabeth A; Fossli, Maria; Winkvist, Anna; Henriksen, Hege Berg; Brekke, Hilde K

The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults

IMPACT调查:成骨不全症对成年人的人文影响

van Welzenis, Taco; Westerheim, Ingunn; Hart, Tracy; Wekre, Lena Lande; Semler, Oliver; Rauch, Frank; Dewavrin, Laetitia; Dadzie, Ruby; Prince, Samantha; Raggio, Cathleen

The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers

IMPACT调查:一项混合方法研究,旨在了解成骨不全症儿童、青少年和成人及其照护者的经历

Westerheim, Ingunn; Hart, Tracy; van Welzenis, Taco; Wekre, Lena Lande; Semler, Oliver; Raggio, Cathleen; Bober, Michael B; Rapoport, Maria; Prince, Samantha; Rauch, Frank

Project SATURN- a real-world evidence data collaboration with existing European datasets in Osteogenesis Imperfecta to support future therapies

SATURN项目——一项利用现有欧洲数据集开展的、针对成骨不全症的真实世界证据数据合作项目,旨在支持未来的治疗。

Sangiorgi, L; Boarini, M; Westerheim, I; Skarberg, R T; Clancy, J; Wang, V; Mordenti, M

The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults

IMPACT调查:成骨不全症对成年人的经济影响

Hart, Tracy; Westerheim, Ingunn; van Welzenis, Taco; Semler, Oliver; Raggio, Cathleen; Rauch, Frank; Dadzie, Ruby; Prince, Samantha; Wekre, Lena Lande

Osteogenesis Imperfecta: A study of the patient journey in 13 European countries

成骨不全症:一项针对13个欧洲国家患者就医历程的研究

Westerheim, Ingunn; Cormier-Daire, Valerie; Gilbert, Scott; O'Malley, Sean; Keen, Richard

SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements

SATURN:评估利用现有注册库收集真实世界证据数据以满足患者、监管机构、卫生技术评估机构和支付方要求的可行性

Sangiorgi, L; Boarini, M; Mordenti, M; Wang, V; Westerheim, I; Skarberg, R T; Cavaller-Bellaubi, M; Clancy, James; Pinedo-Villanueva, R; Lente, E J V; Marchetti, M