日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Association Between the Angioedema Control Test and Attack Frequency in Hereditary Angioedema

遗传性血管性水肿患者血管性水肿控制测试与发作频率之间的关联

Yarlas, Aaron; Feld, Alexandra J; Bjorner, Jakob B; Thurm, Cary; Bordone, Laura; Newman, Kenneth B; Treadwell, Sabrina; Cohn, Danny M

The patient experience of hereditary angioedema: findings from a racially diverse sample of adult patients

遗传性血管性水肿患者的就医体验:来自不同种族成年患者样本的研究结果

Broderick, Lynne; Foster, April M; Waldman, Laura Tesler; Bordone, Laura; Valentine, Jordan; Yarlas, Aaron

Donidalorsen for Long-Term Prophylaxis of Hereditary Angioedema Attacks: Results from the OASISplus Open-Label Extension Cohort at Year 1

多尼达洛森用于遗传性血管性水肿发作的长期预防:OASISplus开放标签扩展队列第1年的结果

Lumry, William R; Tachdjian, Raffi; Craig, Timothy; Karakaya, Gül; Gelincik, Asli; Stobiecki, Marcin; Jacobs, Joshua S; Gokmen, Nihal Mete; Reshef, Avner; Manning, Michael E; Grammatikos, Alexandros; Giardino, Francesco; Guilarte, Mar; Baptist, Alan P; Bordone, Laura; Newman, Kenneth B; Treadwell, Sabrina; Lin, Tao; Yarlas, Aaron; Riedl, Marc A; Cohn, Danny M

Patient Preferences for Long-Term Prophylactic Treatment in Hereditary Angioedema: A Discrete-Choice Experiment

遗传性血管性水肿患者对长期预防性治疗的偏好:一项离散选择实验

Villa, Kathleen F; Mansfield, Carol; Yarlas, Aaron; Ruggles, James A; Bordone, Laura; Kent, Cannon; Vass, Caroline M

Patient-Reported Outcomes in the Phase III OASIS-HAE Study of Donidalorsen for Hereditary Angioedema

多尼达洛森治疗遗传性血管性水肿的III期OASIS-HAE研究中的患者报告结局

Riedl, Marc A; Yarlas, Aaron; Bordone, Laura; Treadwell, Sabrina; Wang, Sophie; Newman, Kenneth B; Cohn, Danny M

The adolescent experience of hereditary angioedema: a qualitative study of disease burden and treatment experience

青少年遗传性血管性水肿的经历:疾病负担和治疗经历的定性研究

Broderick, Lynne; Foster, April; Waldman, Laura Tesler; Bordone, Laura; Yarlas, Aaron

Estimating Meaningful Differences in Measures of Neuropathic Impairment, Health-Related Quality of Life, and Nutritional Status in Patients With Hereditary Transthyretin Amyloidosis

评估遗传性转甲状腺素蛋白淀粉样变性患者神经病理性损伤、健康相关生活质量和营养状况指标的显著差异

Folkvaljon, Folke; Gertz, Morie; Gillmore, Julian D; Khella, Sami; Masri, Ahmad; Maurer, Mathew S; Cruz, Márcia Waddington; Wixner, Jonas; Chen, Jersey; Reicher, Barry; Kwoh, Jesse; Yarlas, Aaron; Berk, John L

Content validation of the Angioedema Quality of Life Questionnaire (AE-QoL) in a population of adult and adolescent patients with hereditary angioedema (HAE)

在患有遗传性血管性水肿 (HAE) 的成人和青少年患者人群中,对血管性水肿生活质量问卷 (AE-QoL) 进行内容效度验证

Broderick, Lynne; Foster, April; Waldman, Laura Tesler; Jacobs, K D; Bordone, Laura; Yarlas, Aaron

Internal consistency, construct validity, and responsiveness of the MRC Prion Disease Rating Scale

MRC朊病毒疾病评定量表的内部一致性、结构效度和反应性

Leidy, Leah; Yarlas, Aaron; Pulido, Robert S; Ludwig, Jessica; Glisic, Kathleen; Appleby, Brian S

Development of a user guide to support administration of the MRC Prion Disease Rating Scale in research and clinical settings for prion diseases

开发用户指南,以支持在朊病毒疾病的研究和临床环境中应用MRC朊病毒疾病评定量表。

Pulido, Robert S; Marshall, Chris; Smith, Anne V; Edge, Hannah; Yarlas, Aaron; Appleby, Brian; Brandel, Jean-Philippe; Collins, Steven; Omer, Nurit; Zerr, Inga; Mead, Simon