Transition from child to adult health care for patients with lysosomal storage diseases in France: current status and priorities-the TENALYS study, a patient perspective survey
法国溶酶体贮积症患者从儿童医疗保健过渡到成人医疗保健:现状与优先事项——TENALYS 研究,一项患者视角调查
期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-022-02232-w
Genevaz, Delphine; Arnoux, Armelle; Marcel, Catherine; Brassier, Anaïs; Pichard, Samia; Feillet, François; Labarthe, François; Chabrol, Brigitte; Berger, Marc; Lapointe, Anne-Sophie; Frigout, Yvann; Héron, Bénédicte; Chatellier, Gilles; Belmatoug, Nadia