日期 影响因子
日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:
–

Levels and correlates of pandemic anxiety in people living with rare diseases: a cross-sectional analysis using a structural equation model

罕见病患者疫情焦虑水平及其相关因素：基于结构方程模型的横断面分析

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-025-04152-x
Siebel, Hermann; Zybarth, David; Inhestern, Laura
发表日期：2026
文献求助 收藏

Exploring burnout and uncertainty in healthcare professionals: a path analysis within the context of rare diseases

探讨医疗保健专业人员的职业倦怠和不确定性：罕见病背景下的路径分析

期刊:Frontiers in Public Health
影响因子:3.4
doi:10.3389/fpubh.2025.1417771
Zybarth, David; Inhestern, Laura; Bergelt, Corinna
发表日期：2025
文献求助 收藏

Factors Associated With Depression and Anxiety in People With Rare Diseases During COVID-19: A Cross-Sectional Study

COVID-19 期间罕见病患者抑郁和焦虑的相关因素：一项横断面研究

期刊:Depression and Anxiety
影响因子:3.3
doi:10.1155/da/9002779
Inhestern, Laura; Schwab de la O, Alba; Zybarth, David; Brandt, Maja; Otto, Ramona; Härter, Martin; Bergelt, Corinna
神经科学
发表日期：2025
文献求助 收藏

Psychometric re-evaluation of the German version of the Physicians' Reaction to Uncertainty Scale

对德语版“医生对不确定性反应量表”进行心理测量学重新评估

期刊:Frontiers in Psychology
影响因子:2.9
doi:10.3389/fpsyg.2025.1552177
Zybarth, David; Inhestern, Laura; Bergelt, Corinna
发表日期：2025
文献求助 收藏

Uncertainties of healthcare professionals and informal caregivers in rare diseases: A systematic review

罕见病领域医护人员和非正式照护者的不确定性：一项系统性综述

期刊:Heliyon
影响因子:3.6
doi:10.1016/j.heliyon.2024.e38677
Zybarth, David; Inhestern, Laura; Otto, Ramona; Bergelt, Corinna
发表日期：2024
文献求助 收藏

Patient experiences of interprofessional collaboration and intersectoral communication in rare disease healthcare in Germany - a mixed-methods study

德国罕见病医疗保健中患者对跨专业协作和跨部门沟通的体验——一项混合方法研究

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-024-03207-9
Inhestern, Laura; Otto, Ramona; Brandt, Maja; Zybarth, David; Oheim, Ralf; Schüler, Helke; Mir, Thomas S; Tsiakas, Konstantinos; Dibaj, Payam; Zschüntzsch, Jana; Okun, Pamela M; Hegenbart, Ute; Sommerburg, Olaf; Schramm, Christoph; Weiler-Normann, Christina; Härter, Martin; Bergelt, Corinna
发表日期：2024
文献求助 收藏

[Consequences of a pandemic for people living with rare diseases and recommendations for maintaining healthcare and participation]

【疫情对罕见病患者的影响及维持医疗保健和参与社会活动的建议】

期刊:
影响因子:
doi:10.1007/s00103-023-03810-4
Zybarth, David; Brandt, Maja; Mundlos, Christine; Inhestern, Laura
发表日期：2024
文献求助 收藏

Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study

从患者组织的角度探讨新冠疫情对罕见病患者医疗保健和日常生活的影响——一项定性访谈研究

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-023-02771-w
Zybarth, David; Brandt, Maja; Mundlos, Christine; Inhestern, Laura
微生物学
新冠
发表日期：2023
文献求助 收藏

[Healthcare for people with rare diseases: recommendations for successful intersectoral collaboration]

[罕见病患者医疗保健：成功开展跨部门合作的建议]

期刊:
影响因子:
doi:10.1007/s00103-023-03719-y
Inhestern, Laura; Brandt, Maja; Otto, Ramona; Zybarth, David; Härter, Martin; Bergelt, Corinna
发表日期：2023
文献求助 收藏

Interface management concepts in healthcare for rare diseases in Germany: a study protocol for a mixed-methods study to develop best practice recommendations

德国罕见病医疗保健中的界面管理概念：一项旨在制定最佳实践建议的混合方法研究方案

期刊:BMJ Open
影响因子:2.3
doi:10.1136/bmjopen-2020-040470
Inhestern, Laura; Zybarth, David; Otto, Ramona; Brandt, Maja; Härter, Martin; Bergelt, Corinna
发表日期：2020
文献求助 收藏