The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity

社区与患者合作研究网络(CPPRN):应用以患者为中心的结果研究促进行为健康公平

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Abstract

OBJECTIVE: We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans. SETTING: A community-academic partnership across Los Angeles County and New Orleans. METHODS: Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN. FINDINGS: Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings. CONCLUSION: The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.

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